Help Cure Rare Disease

Cure Rare Disease is a 501c3 nonprofit biotechnology organization that is pioneering the development of tailor-made medicines for children suffering from rare, genetic diseases who have no treatment or cure. Cure Rare Disease (CRD) does this through a collaboration of the leading academic research institutes, researchers and clinicians in the United States. Founded by Rich Horgan, Cure Rare Disease was born out of frustration with the lack of medical options for his own brother Terry, who was born with a muscle-wasting disease called Duchenne muscular dystrophy. People impacted by Duchenne typically live until their mid-20s and there is currently no effective treatment or cure. Moreover, over 30% of rare disease patients are children.

The Cure Rare Disease customized therapeutic approach is a new approach to treating previously untreatable rare and genetic diseases. Whereas traditional drug development treats more prevalent diseases with a one-size-fits-all approach, and has followed this approach for decades — Cure Rare Disease and collaborators develop customized medicines using the patient’s own cells to inform and guide therapeutic development. Researchers from Yale School of Medicine, Charles River Laboratories, the University of Massachusetts Medical School and several other collaborators work together and share their findings to accelerate the research from research bench to patient bedside. 

The ultimate vision of Cure Rare Disease is to enable all patients, regardless of their disease, to get an effective treatment in time. We do so by working across the healthcare ecosystem with the FDA, insurance companies, researchers and clinicians so that our customized therapeutics will be covered by insurance and efficiently approved by the FDA.

You can learn more about Cure Rare Disease at cureraredisease.org and follow them on social media @cureraredisease.

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